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Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support--all while attempting to manage...
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"Typically the patient -- and his or her course of treatment -- are the natural focal points when it comes to Alzheimer's disease (AD). But Alzheimer's is an equally debilitating illness for family members and caregivers who must come to terms with its far-reaching emotional and physical burdens. In this handbook, clinicians are taught how to navigate the many interpersonal issues at the heart of AD -- that is, how to work with the families and friends...
Description
This text tells the stories of seven people with a distinct perspective on cancer. Experts on medical ethics, personal experience showed them how little they knew about the real world of serious illness. In this book, they describe cancer's teachings on ethics, medicine, and the experience of illness.
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Description
What is it like to live with--and love--someone whose death, while delayed, is nevertheless foretold? In Living in Death's Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued...
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The story of a family helping their mother to face dementia and learning to love each other again in the process.
When the vibrant, beloved Miss Peggy began the agonizing descent into the darkness of dementia, her family faced with questions no one can answer. Benson takes an intimate look at what dementia means for a family: how do you organize your mother's new life, how do you move her from her cherished home, how do you come to terms with the...
Description
Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals -- and to suggest ways to improve the situation. The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics,...
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Description
"Caring for a parent whose health is in decline is a deeply meaningful way to express your love and loyalty. But if you've picked up this book, chances are you're also struggling with some aspect of your role as a caregiver. Whether you're tired of clashes with siblings, frustrated that your parent no longer seems to appreciate your help, or confused by ambivalent feelings, you're not alone. The emotional toll of caregiving is seldom acknowledged,...
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Description
Some 400,000 hip fractures occur every year, the vast majority among the elderly; all too often these fractures are associated with death or severe disability. After her mother's double hip fracture, Luisa Margolies immersed herself in identifying and coordinating the services and professionals needed to provide critical care for an elderly person. She soon realized that the American medical system is ill prepared to deal with the long-term care needs...
Description
Shows how hospice can provide an opportunity to find comfort, companionship, and peace before death for terminally ill patients and their families. The program sheds light on the decision-making process of the doctors, nurses, chaplains, social workers, and volunteers involved in the hospice.
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Description
"Here, readers will gain a better understanding of their own lives and know they are not alone in the emotional struggles of caring for an aging patent. Distress can become peace of mind. Relationships that might be weakened by a caretaker rule - between caretakers and their children, spouses, and friends - can actually grow stronger with the experience."--Jacket.
Description
This collection of international perspectives on the complexities and management of caregiver stress and staff support extends the firm foundation Mary Vachon built over 20 years ago in her studies, and broadens the scope to include significant social, political and cultural variations on the theme.
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Description
More than just a discussion of the medical and practical aspects of stroke and stroke recovery, this book focuses on the emotional, psychological, and social consequences of stroke and the deeply personal side of caregiving. When Your Spouse Has a Stroke will relieve your burden and strengthen your partnership.
Author
Description
According to the Bureau of Labor Statistics, there were approximately 1.7 million home health aides and personal and home care aides in the United States as of 2008. These home care aides are rapidly becoming the backbone of America's system of long-term care, and their numbers continue to grow. Often referred to as frontline care providers or direct care workers, home care aides, disproportionately women of color, bathe, feed, and offer companionship...
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Description
"What are the limits of sympathy in dealing with another person's troubles? Where do we draw the line between caring for a loved one, and being swallowed up emotionally by the obligation to do so? Quite simply, what do we owe each other? In this study, David Karp chronicles the experiences of the family members of the mentally ill, and how they draw "boundaries of sympathy" to avoid being engulfed by the day-to-day suffering of a loved one." "Working...
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